A couple weeks ago I updated you all on my mother's recent diagnosis with MDS, a bone marrow cancer. I wanted to offer a brief update on where things are standing now.
They tested my siblings and I, my uncle, and my Nanny (grandma) to see if any of us were matches to my mom. None of us were. They have yet to find a 10/10 match for my mother. They have found a few 9/10 but we are still hoping for a 10/10 as the success rates are higher with a perfect match.
In efforts to find this perfect match, my mom's sister (Becky) and mother (nanny) planned a bone marrow registration drive in Chillicothe, OH this upcoming Saturday. We are ALL also pushing/encouraging people to sign up to be on the registry by going to marrow.org and requesting a kit to be sent to your house. So many people are in need of a transplant (roughly 10,000 people at any given time). Almost half of those struggle to find matches. Let's change this by registering and encouraging people to register! It's only a blood donation, no surgeries, no long hospital stays!
Today, Robin Roberts announced that she too has MDS. We (my mom's friends and family) are trying to get national attention for this drive, and bone marrow donation in general. If you follow my twitter page then you saw lots of tweets about this, and if you're on my facebook, then you saw lots of posts about this. Please share this incredible article about my mom and her family with others, and please use social media to spread the word on her behalf.
#261: The power of social media.
#262: So grateful that my mom is a fighter, from a family of fighters. We don't give up (see last post ;)) and we won't stop fighting for those we love.
#263: Health insurance. And the health insurance reform. Eternally grateful for quality care and excited to keep fighting for equal care in our country.
#264: Inspiration. It comes from the strangest places, graduation speakers, long conversations, simple texts.
#265: Having a madre who knows what to do for bad burns from the oven! But not so grateful for the burn!
They tested my siblings and I, my uncle, and my Nanny (grandma) to see if any of us were matches to my mom. None of us were. They have yet to find a 10/10 match for my mother. They have found a few 9/10 but we are still hoping for a 10/10 as the success rates are higher with a perfect match.
In efforts to find this perfect match, my mom's sister (Becky) and mother (nanny) planned a bone marrow registration drive in Chillicothe, OH this upcoming Saturday. We are ALL also pushing/encouraging people to sign up to be on the registry by going to marrow.org and requesting a kit to be sent to your house. So many people are in need of a transplant (roughly 10,000 people at any given time). Almost half of those struggle to find matches. Let's change this by registering and encouraging people to register! It's only a blood donation, no surgeries, no long hospital stays!
Today, Robin Roberts announced that she too has MDS. We (my mom's friends and family) are trying to get national attention for this drive, and bone marrow donation in general. If you follow my twitter page then you saw lots of tweets about this, and if you're on my facebook, then you saw lots of posts about this. Please share this incredible article about my mom and her family with others, and please use social media to spread the word on her behalf. #261: The power of social media.
#262: So grateful that my mom is a fighter, from a family of fighters. We don't give up (see last post ;)) and we won't stop fighting for those we love.
#263: Health insurance. And the health insurance reform. Eternally grateful for quality care and excited to keep fighting for equal care in our country.
#264: Inspiration. It comes from the strangest places, graduation speakers, long conversations, simple texts.
#265: Having a madre who knows what to do for bad burns from the oven! But not so grateful for the burn!
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